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Author Archives: Maria_Myrback

About Maria_Myrback

I am the volunteer managing editor for the blog on the James Randi Educational Foundation (http://randi.org) website, I also write Boobcast.net: the story of my breast augmentation and lift gone horribly wrong and FledgelingSkeptic.com, a blog for people new to skepticism or would like quick references to various skeptical topics.

Advice From My Lawyer

Regular readers may recall an incident several weeks ago dealing with a reply to a post I made on the Complaints Board after my necrosis situation initially occurred. Not long after I replied and complained to the doctor’s office, I got a Cease and Desist letter from the doctor’s lawyer. In case this has never happened to you, believe me when I say, it’s a scary thing.

Fortunately, along with that C&D letter, I got a copy of the settlement. After fretting fearfully and worrying myself into a state of panic, my husband contacted our estate lawyer, who was kind enough to look at the letter and contract. She advised that I remove links to the Complaints Board and any posts mentioning specifics about the settlement. So I will be spending the evening doing just that. She also advised that, while there was nothing specific preventing me from mentioning the doctor’s name, it might be considered a violation of the spirit of the arrangement. Thus, the doctor will remain nameless.

It’s a real relief knowing that I cannot be forced to shut this site down. That was, quite honestly, my biggest fear. I’ve lost so much and been through so much, I don’t know if I could have dealt with having Boobcast taken from me, too. I would have been willing to go all the way to the Supreme Court to keep this place open. Fortunately, now I know I don’t have to worry about it.

 

 
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Posted by on October 24, 2011 in Law, Lawyer, Legal

 

Four Years And Still In Mourning

Today I gave a pep talk to a woman I admire in hopes that some of my own life experience might help her. She is having problems with both men and women who feel that it is okay to say cruel and hateful things to her simply because they disagree with her. The tone of her initial post felt like she was about ready to throw in the towel on doing the work she enjoys because of these hateful people. So I posted the following to her:

I want to tell you a story and I hope this helps you get your feet under you a bit better. Several years ago, back before I was a skeptic and before I had a decent sense of self worth, I had a boob job. I hated the way they looked after breastfeeding two kids and I thought that, as I approached the age of 40, it would make me feel better about myself.

I ended up developing necrosis due to unconfirmed surgical complications and I lost both of my nipples and areolae. I don’t know if there’s a worse experience than watching your own intimate body parts rot away but if there is, I wouldn’t wish it on anyone.

There’s much more to the story which you can read on http://boobcast.com if you are interested.

About a year after my chest healed, (I was severely deformed and required two reconstruction surgeries which i have long since had, to rousing success) I was finally in a mental state to start writing about what happened to me. I was bound and determined to write about it because if I DIDN’T write about it publicly, then, in my mind, the hack that did this to me would win.

That wouldn’t do.

There were SO many times when I had to stop in the middle of writing a post and go have a good, long cry. But I did it. I did it because I REFUSED to let my situation dictate my life. I refused to let what others told me change what I truly thought was the right thing to do.

Boobcast has made a real difference in women’s lives. I get regular emails telling me as much. I talk to women regularly who are scared and in need of reassurance and advice. I’m so very grateful I can do that.

When I was a little girl my father told me to “Stand and fight if you believe you’re right”. I learned determination from my mother who, after a motorcycle accident that left her in ICU for six months, taught herself to walk again when doctors said she never would.

Believe me when I tell you that I know it’s hard. I know it’s disheartening and some days you just want to give up and let the world go to Hell in its own little monogrammed handbasket. And some day you may decide you’ve had enough and that’s okay.

But please don’t let THEM make that decision for you.

I really hope that helps her. She’s doing good work in the skeptical and critical-thinking community and I would hate to see her give up because of all the hate mail and awful things people say about her in the blogosphere.

Unfortunately, this good deed of mine seems to have had some emotional backlash. I realized that even though Boobcast is doing good work, I am still in mourning for my loss. It has been four years as of yesterday since that first surgery and it still hurts emotionally. Not to the degree it used to, but it’s still a visceral pain. I feel nauseous remembering what I went through. I have tears in my eyes remembering what it was like and I wonder if I will ever completely heal emotionally from this.

I have had people suggest that I just walk away from Boobcast for a while. I can’t do that. Women email me regularly asking questions and seeking advice. I know what it’s like to be that terrified so abandoning the thing I have created here is not an option.

The upside is that where there were once great, wracking sobs, there are now just tears and a dull ache. Four years seems like forever and a single heartbeat at the same time. I guess I’m healing. They keep telling me that healing takes time. It’s just taking so long. I know that it will never be truly over because I will always bear the scars of reconstruction as a reminder. I will also always be here for others going through this nightmare.

I can’t abandon my post as long as I’m needed.

It has also been suggested that I start talking to women’s groups about what I have experienced. With the settlement I have, I’m not sure I can do that, but I’m looking in to it. The recent cease and desist letter I got about my comments on the Complaints Board scares the Hell out of me. We’re having a lawyer look at that to make sure that it only pertains to the settlement and not the case itself. If that is the case and it only pertains to the settlement, I will probably start doing that.

In the mean time, life continues on. I still need to have one last round of tattooing done and hopefully that will be it for the medical stuff. I’m thinking that perhaps I’ll do it in November or December, depending on the tattooists schedule. I’ll post when I have something concrete.

 

Feeling Helpless

Have I mentioned lately that I despise feeling helpless? I hate this feeling with a blazing passion.

Since finding the response from someone on the Complaints Board, I have been dealing with a great deal of rage and grief. I haven’t consulted a lawyer about this yet because right now I am emotionally incapable of having a discussion about this without breaking down into a sobbing mess.

My husband has contacted the doctor’s office and requested that their lawyer send us a copy of the agreement that we both signed. Since our original copy disappeared, we need to know for certain what we are dealing with. However, when Ken spoke to our trust lawyer, she said that just because someone on their side violated the agreement, that doesn’t mean that I was permitted to do the same.

I’m really not sure how that works. If someone breaches the terms of a contract, then that contract becomes null and void, doesn’t it? I really feel like I’m back at square one with this whole situation. It’s as if the surgeon and his people can do whatever they want, but I have no recourse. If I DO publish the name publicly, then I could potentially open myself up to a lawsuit.

If any of you have any ideas, I’d appreciate the input.

[Editor's Note: This post has been edited to remove a link and name under advice of my lawyer. Visit here for details]

 

My Legal Settlement – An Update

I finally found a way to login on the complaints board (see the first part of this posting below) and post a response to the accusation that, it appears, was most likely made by him or a member of the surgeon’s staff. I also sent an email to his office through his website letting him know that I knew about that comment.

In addition, I let him know that, because that comment was so obviously written by someone in his office, I considered that a breach of contract. On the down side, our lawyer has said that just because someone on his side broke the contract, that doesn’t mean that *I* can. So I’m just going to keep linking back to that initial post I made before the contract was signed whenever I need to reference the surgeon.

[Editor's Note: This post has been edited and certain links removed on the advice of my lawyer. Please visit here for details]

 

My Legal Settlement

Earlier today I received the following email from a regular reader here at the blog. For personal reasons, the reader has asked that they be kept anonymous.

Maria,

In your blog, you said you signed papers with your doctor not to name them.  Did you have a settlement?  Did you have the option not to settle, instead spread their name all over? Or did an attorney advice you about libel or defamation?

If you can comment without naming the doctor, much appreciated.

I have written before about how I tried to deal with the legal ramifications of what happened to me. I also wrote about the settlement that currently binds me from mentioning the name of the surgeon. HOWEVER, before I agreed to the settlement that prohibits me and my “agents” from mentioning the surgeon’s name, I wrote a few posts. Those are listed below in my response to the reader’s questions.

Dear Reader;

I am, unfortunately, also bound from talking about the terms of the settlement as well. I DID have the option not to settle. At that point I was deeply clinically depressed and traumatized. I didn’t want that person to have anything to do with my medical care any more. I would start shaking every time I had an appointment. I just wanted it to be over with so I went with the first available way out.

People keep telling me that I’m brave. This is one of those instances where I was not. I DID put up a synopsis of what happened on the Complaints Board [Editor's Note: This post has been edited on advice from my lawyer.Please visit the link for details]

I never spoke to a lawyer about defamation, but I was a journalist so I know that once I signed those papers, I am legally bound, along with my “agents”, not to reveal his name. HOWEVER, those two links were written up before the contract went into effect.

Here is where things get interesting. I just happened to notice that a person I am presuming is the doctor in question or one of the 2-3 staff members familiar with the case (aka one of his “agents”), made a brief response to my initial post on the Complaints Board. I am presuming this because of the use of the phrase “ridiculous herbal remedy’ in the response. That is FAR too personal to have been written by someone just reading entries on the complaints board.

And so, dear reader, I am going to war. For some reason I am having technical difficulties logging on and making a response to that accusation. Once I do, you all may want to stop by for a look because I can guarantee that things are going to get very, VERY interesting.

This surgeon does not know with whom he is messing. He’s about to find out.

 

Dragon*Con 2011 smartphone app

Even though this app doesn’t show multiple schedules, the maps, personal schedule and Twitter integration are still invaluable. To download it, visit here.

 
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Posted by on August 26, 2011 in Uncategorized

 

More Breast Necrosis Photos

WARNING: As with the my personal breast necrosis photos, these images are very graphic and explicit. They are not safe for work or young children. These are not my photos. They come to us from a regular reader who has asked that the images be contributed anonymously. I commend her on her bravery. I know how frightened I was of contributing my own photos. She feels that the more images of breast necrosis that are out there, the better for all the women out there going through this.

These photos are all post-debridement (the removal of dead tissue to create a bead for new tissue to grow. Though you can see the few remnants of fat necrosis in the Week 4 image. For those not familiar, necrosis is the black spots.

To see my personal necrosis photos, please visit here.

Her photos, along with a description, follow below.

Week 4:  After debridement, wound expanded to 3-4 times in width

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Left breast also had small area of necrotic skin and split to double the size after debridement.

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Week 5-6: Necrotic tissue trimmed and healthy tissue forming.
(Right breast)

Right

(Left Breast)

image.jpeg

Week 6-7:  Skin starting to form around areolas and outer edges of wounds sealed and starting to form skin.
image.png

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I wIll continue to post progress as our friend sends updates.
 
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Posted by on August 24, 2011 in Uncategorized

 

Fear of Losing My Breasts

I’ve talked about this subject before but now it’s becoming a more vivid fear. A couple months ago I was diagnosed with hypothyroidism. My doctor put me on a 50 mcg dosage of Synthroid. Within days my body reacted to the new influx of hormones. The first thing that happened was my head felt like it was on fire. I spent days walking around the house with an ice pack on my head just to keep cool. I was also having vicious mood swings from Hell to the point that I was abusive to everyone or I was sobbing. Or I was deliriously happy. Kinda scary. Add to that, when I woke in the mornings my heart felt like it was POUNDING in my chest.

One trip to the clinic and a blood test later and the Doc dropped my dosage to 25 mcg. He’s going to ramp me up slowly to a standard dosage because while my blood test results showed improvement, it’s not *enough* of an improvement.

However, now that my metabolism is improving, I’ve started to lose a little weight. How do I know this? I was cleaning out my closet and found some old embroidered jeans that I love in a size smaller than the size I wear now. On a whim I tried them on and while they’re a little bit snug, they fit.

This is, of course, what triggered an adventure in fear. I have told my husband repeatedly that this is an unreasonable fear. I *know* it’s unreasonable. But my emotions and the past overrule reason every time. I am scared to death that if I lose a lot of weight the Twins will shrink away to nothing and I’ll be back to being the deformed, sub-human thing that I was before Dr. Elliott did the reconstruction.

Like I said…unreasonable fear.

Yes, the Twins will shrink as the rest of my body does. It’s just biology. But I’m still terrified.

I’m considering seeing a psychologist about this. I think it may be related to the post traumatic stress disorder flashbacks I had for a while. Those only occur once every few months now and only in the shower. It’s been going on long enough that I may need to see someone though.

And so the Boobcast saga continues.

 

Another Breast Necrosis Story

Recently I received an email from a woman who prefers, for anonymity sake, to go by the name of Sweet Swede. She is also a breast necrosis survivor. Like me, she feels that other women need to know about this very real risk. She was kind enough to send me her story and her own breast necrosis photos. Here is her story:

I was diagnosed with Ductal carcinoma in situ (DCIS) and since I had such large breast a “lumpectomy” didn’t scare me too much. There were several lumps found via a MRI with contrast material shot in through the nipple.  I stayed overnight in the hospital and was released the next day.  That night I was able to loosen the bandages and I noticed a slight darkening of the right nipple.  I called the next day thinking the bandages were just too tight, and they had me come in the office.  They poked the nipple with a needle several times, making it bleed and said it should be ok, but to come back in 3 days.  I spent those 3 days on the computer, because to me it was obvious that the tissue was dying…it was turning a dark, deep black.  It was all down hill from there, every appointment, they cut out more of the dead tissue and I had to change bandages twice a day.  Which was brutal, because I had to look at it and I had to literally lift and push breast tissue back into my body and tape it together.  Finally I told the doctor I could no longer contain the hole and the tissue with the average 4X4 that they sell over the counter, so he scheduled an emergency surgery to repair.  This surgery was hard on me for some reason, I was extremely sick afterwards and a little pissed because the doctor took a skin graft from my leg, even though he said right then, he knew it wouldn’t take because the infection was too deep and widespread at this point (I didn’t even know I had an infection going in).
I went home and was sooooo over the moon excited because I actually had a breast again, it was smaller than the other but that awful, nasty, smelly tissue was gone.  However the next day (Christmas morning) I woke up in such pain and the staples were oozing and leaking out pus.  I hated calling the doctor on Christmas but I had to, I couldn’t take the pain.  He saw me that day and again….it was all down hill from there.  I was desperately wishing and taping the staples together every day, hoping they wouldn’t burst….but in the end, they all did and now I had a larger hole than ever and the amount of tissue hanging out was so nasty, I could hardly look at it without gaging, and I had to change bandages constantly (this is all while holding down a full time job).  My breaking point with this doctor was when he sutured the drainage tubes to the side of my breast into healthy tissue and just didn’t think to give me any anesthesia at all…not even any numbing cream.  
I went to my regular primary doctor and she pulled off the bandage, gasped and immediately jumped into action, getting me into a wound care facility.  Now these people were awesome….I was so scared of pain at this point I doubled up my pain meds before going in, thinking they would hurt me like the other doctor had so often.  They didn’t…and from that point on I didn’t take any more pain meds and they took such great care of me.  The first thing they did was cut out all the tissue, leaving me with a 2 1/2 inch deep hole.  I could stick my entire hand into the hole, turn to the side and you couldn’t even see my knuckles.  According to the wound care Doc, all that tissue was dead anyway, and just getting in the way of healing.  After awhile they attached a wound VAC to it and that was such a relief.  I no longer changed any of my bandages, but I was chained to the device for 3 months.  I had to carry it to work with me….I got over the embarrassment fairly easy by just making jokes. When people would ask, I would make crap up…like “Oh this…well I got busted drinking again and they were out of ankle bracelets…so I have to wear the backpack version” :) LOL.
I am over two years out of that now….and can kinda consider reconstruction….but I am still too scared.  Maybe in a few more years, I don’t know…I’m kinda used to my little fake booby.  I do get tired of buying special bra’s though and my scars are still quite painful.  The nipple area has gone keloid on me so its probably the worst.  Most the time though Im just fine with the mess I got :) , scars and all.
The last image is pretty much where it is today.  Some of the surrounding tissue has stretched and the center (nipple) area is red, puffy and turned into a keloid scar.  I haven’t the gut’s to try again…..especially after re-visiting these images.  Maybe one day I will try to reconstruct, but I dont know.  I might just live with what I have now.
Final phases of healing from the wound VAC.  This is a wonderful machine but pricey.  My ‘excellent’insurance wouldn’t cover allot of the cost, which was over $10,000 to rent the machine and $146.00 per day for supplies.  I believe I had it on for over 60 days.  After having to decline the machine at first for lack of funds, I was finally able to plead to the Wound VAC company and they granted me a hardship which covered 75% of what my insurance wouldn’t cover.  If it wasn’t for that machine, Im told I could still be dealing with an open wound today….two years later.
SweetSwede
Below are her breast necrosis photos.
 

Horror Stories

Without fail, about once every two weeks I get an email from another woman who is terrified that her breasts are turning necrotic. These women tell me that they have been searching for some resource or some visual reference to show them what breast necrosis looks like. It seems that Boobcast.com and my personal photos is the only visual reference on the internet.

Until now.

One brave woman who has asked to be called Sweet Swede has sent me her breast necrosis photos. Those images, which are quite different from mine, along with her story,will be going live tomorrow.

Please visit the site tomorrow to see her story.

 
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Posted by on April 22, 2011 in Uncategorized

 
 
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