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Category Archives: complications

Inquiries

Yesterday I made two calls. One was to the Federation of State Medical Boards and the other was to the American Society of Plastic Surgeons. Unfortunately neither person I was directed to has called me back. I AM prepared, however. I have a list of questions that I’m prepared to ask.

1) Are plastic surgeons required to report botched surgeries? (a surgery with complications attributed to surgeon error)

2) if yes, to whom do they report? Is there disciplinary action?

a) if not, why not?

3) Are there statistics available on the number of complications that develop after surgery?

4) Is it true that any MD can call themselves a plastic surgeon even if they don’t have the specialty training?

5) what regulations are in place to protect the consumer from #4?

What other questions would you like to see answers to?

 

Rub Me The Right Way

Today we’re discussing ways to break up scar tissue adhesions.

Since the first day after surgery my back has felt tight, as though I were squeezed into a proper corset. For those not familiar with corseting, it is an undergarment from the Elizabethan era worn on the torso that uses boning to give a more shapely figure. The boning then was whale bone because of it’s strength. Today the whale bone has been replaced by plastic. But for some diehards, there is steel boning.

At one point in my life I was the half owner of a web based Renaissance fashion company. I traveled all over the south east dressed in Elizabethan finery to promote the company. So I know what it’s like to be corseted.

The last time I spoke to someone about this, it was a massage therapist client in southern Georgia. He suggested that the reason I still feel like that is because the scar tissues has adhered, or grown on to, the fascia layer of skin. Thus the term “adhesions”.

According to Patti Bergley, the nurse at Dr. Elliot’s office, I do NOT have adhesions. Adhesions refer mostly to bowel tissue adhering to the abdominal wall. I just have scar tissue. The scar tissue is tight and will, according to Patti, soften over time. What will HELP with that is exercise and stretching.

I told her that when I stretch it feels like things are tearing in my back. She said that was a good thing. Stretching and exercise will actually do more to increase flexibility than cross fiber friction massage. From a medical standpoint, all massage will do is soften the scar tissue.

I have an exercise ball. You know…those big rubber balls with the 2 foot circumference that you lean back on. So I’m going to start using that and see if it does any good.

As usual, I will report back.

 

Topless

I’ve done the research and I think I’ll be trying this idea out at a local level. Maybe at Daytona Beach first. According to local ordinance in New Orleans, lewd behavior constitutes exposing their genitals, have sex, masturbating, urinating or defecating in public.

The reason I state the local New Orleans law is that I have been considering going topless ever since I got the new Twins. I’m currently investigating what, specifically, constitutes genitalia. Of course there is the obvious penis and vagina. When it comes to women, is it JUST the nipple? Is it the nipple and areolae? How MUCH of the breast can be exposed without falling into the “lewd’ category?

Since I don’t have nipples or areolae, CAN I get away with going topless in public? The woman in this photo was at a “Naked Bike Ride” and did not get arrested.

None of the (nearly) naked people during World Naked Bike Day were arrested. Of course you can tell by looking closely that nothing is showing. So the question becomes this: if I don’t have anything that needs to be covered, do I still have to cover the place where they would be?

I’ve contacted the Daytona Beach police department since this is going to be my test area. I’ll put up an update when I get an answer. And of course, I’ll be announcing my topless adventure when I do it.

UPDATE:When I talked to my DH about going topless last night, he asked an important question. That question being “Why?”. It occurred to me that many readers are probably asking the same question.

It has always been my intention in writing BoobCast to be a support system for other women who have gone through botched plastic surgery. One of the  biggest issues I had was not feeling as though I were “normal”. Since I still don’t have nipples and areolae, I’m still not “normal”.

By going topless I want to be a visual example to others that it’s okay to be “in process”. Most importantly, it’s okay to go out in public WHILE you’re in process.

I felt SO self conscious before my breast reconstruction that I didn’t really enjoy being in public much. I was convinced that everyone could see how deformed I was no matter how baggy my clothes were.

It’s also an opportunity to talk about BoobCast and what can happen when plastic surgery goes wrong.

 

Clothes Shopping-A BoobCast Flashback

Originally written on Oct. 26, 2009

This is another one of those issues that comes with being mostly boob-less.  Clothes shopping is frustrating.  I feel more comfortable in the Men’s section than the Women’s. The women’s section, even if there is no one else there, is a constant reminder of what I don’t have.

It’s also more difficult to find clothes that fit. Anything that fits tightly across the chest shows the outline of my deformity. And lets face it, most women’s clothing is geared to fit close to the body and accentuate our breasts. Even the camisoles with foam cups give a minor indication that something isn’t quite right because  of how the cups move since they’re not filled with breast tissue.

The men’s section offers a better selection of loose-fitting clothes. So I shop at Goodwill because I know that when this is over I can take the clothes back and donate them again. Someone else will be able to get use out of them when it’s all done.

Aside from this mangled thing that once was my chest, I think that shopping in the men’s section is one more reason I just don’t feel feminine. (see other Girly Girl posts).

Now in the movie “Dogma” the character called the Muse talked about how what defines a woman falls between two things…her legs. From a biological standpoint that IS true. Boys have a penis and girls have a vagina, after all. From a societal standpoint, however, women are judged by their breasts. If I don’t have breasts, am I still really a woman?

Breast cancer patients go through the same thing WHILE fighting a disease that could kill them. That’s why I can’t begin to compare myself to a breast cancer survivor. Not in the physical sense anyway. Mentally we go through much of the same thing. We question if we’re still actually women. We feel diminished; as though we’re somehow not fully human and wonder how our partners will EVER find us attractive again.

Yes, that complicated ball of emotions comes with clothes shopping. In the men’s section.

 

Cross Fiber Friction Massage

Yesterday I had a long and very enlightening discussion with an experienced massage therapist. We talked about the plastic wrap sensation I have in my back still. He explained to me that after surgery sometimes adhesions form in the connective of fascia tissue.

An adhesion is a band of scar tissue that binds two parts of your tissue together. They should remain separate. Adhesions may appear as thin sheets of tissue similar to plastic wrap or as thick fibrous bands. The tissue develops when the body’s repair mechanisms respond to any tissue disturbance, such as surgery, infection, trauma, or radiation.

The massage therapist explained that he had dealt with adhesions before and they appear as described above: cable-like or thin sheets like mine. He talked about a deep tissue massage technique that is used with great success. it is called cross fiber friction massage.

In this technique the fascia, a strong connective tissue which performs a number of functions, including enveloping and isolating the muscles of the body, providing structural support and protection is manipulated in order to break up the adhesions.

Cross-fiber friction involves doing transverse movements to the connective tissues, like tendons and ligaments, in order to loosen up their fibers.This can be performed by opposing thumbs or the heal of the hand, especially on the iliotibial band, a band of muscle in the thigh.

So basically a trained massage therapist uses deep tissue massage going across the grain of the adhesions in order to break them up. This takes quite a few sessions. According to an article in Massage and Bodyworks Magazine, the therapist should keep your pain level at around a 6 on the 1-10 pain scale for 20-30 minutes per session.

The therapist I spoke to explained that yes, it IS uncomfortable and there is a great deal of deep breathing involved in a session. But once the adhesions are broken down it is easier for your body to heal. You will have better range of motion and, best of all, no more plastic wrap feeling!

Because the therapist I spoke to is so far away, I’m going to look into finding someone close by who has the experience to handle this. But before I go, I’m going to call Dr. Elliott’s office and talk to his nurse, Patti. I want a medical opinion on this before I go and do something that may cause me more harm than good.

As usual, I’ll let you all know how it goes.

 

Our First Story

Our first story is one that was told to me a few months ago. A woman I spoke with told me about her 67 year old mother. We’ll call her Barbara for the sake of this narrative.

Barbara is a cancer survivor. She had a mastectomy on one side and reconstructive surgery later. He daughter didn’t share with me the length of time between the mastectomy and the reconstruction. It is generally suggested that a woman either get reconstruction done immediately after a mastectomy (breast removal) or wait two years for the chemotherapy to be completely out of the system.

The chemicals used in chemo affect the circulation and can interfere with healing after surgery. As a side note, chemo can also leave behind little blue spots in the skin.

Barbara opted to wait and still developed necrosis. Her daughter didn’t share with me how severe it was. She only told me that her mother was SO sick of surgeries that she decided not to have the damage repaired. Barbara said that at her age she just didn’t want to deal with any more of it.

That is a pretty standard attitude with people who have been through a great deal of medical treatment. It’s exhausting. It eats away pieces of your life and by the time you’re done, you just don’t want to deal with any more.

I’m still looking for plastic and reconstruction surgery stories to share so please email them to boobcast@gmail.com. All names are kept confidential unless otherwise requested.

 

The 200th Post

As the title says, this is the 200th installment of BoobCast. Today I am writing about you, dear reader. Today’s installment is all about the support and the stories that people have shared with me since I first started this blog on Oct. 11, 2008.

When I first started writing this, I was also fairly active on a website called All About Plastic Surgery (http://www.allaboutplasticsurgery.com). When I posted what had happened to me it didn’t take long before I was inundated by questions about various aspects of the surgery. You can find that entry here: http://boobcast.net/2008/10/14/questions/ People expressed a great deal of concern about how well I had checked out the surgeon, what indications I might have had and what legal recourse I might have taken. During that period so many people gave their support and I am grateful for it. So my thanks goes out to the women of the All About Plastic Surgery forum. They were the ones who inspired the idea for BoobCast.

Now you’re probably asking yourself, “Gee Maria, why do you call it BoobCast? Were they wrapped in plaster or something at one point?”

No, dear reader. There are reasons this site is called BoobCast.  In 2007 the podcasting community lost a precious member by the name of Joe Murphy. He died of a vicious type of cancer that took him quickly. During his medical treatments he talked in vivid detail about what was going on, the testing and all of it. His strength inspired me. I wanted to be as strong and as brave as Joe Murphy. So I planned to podcast what was going on with my breast necrosis. The name of that podcast was going to be BoobCast.

I never met Joe but his life inspired me. It just turns out that I’m not that strong or that brave. To honor that bravery I have kept the name.

I also owe thanks to a very dear friend, Tee Morris. When I was trying to find the strength to create BoobCast, He was there for me. He gave me mental and emotional support by letting me know that I *could* do it. I’m sorry I disapointed you Tee but want to thank you for being a friend when I needed one.

In the time I’ve been writing BoobCast I have had people email me directly for advice. Of course, after reading the email, my advice was always “Contact your PS (plastic surgeon) and ask for [fill-in-the-blank]. Whether it was about bruising, skin texture or pain, I advised talking to their doctor. If they couldn’t get a decent answer from that doctor, talk to another one.

The one that really broke my heart was the husband of a woman who, a few days previous the email,  had the same procedure I had. According to her husband, the pain pills her PS had given her weren’t doing much and she was in constant pain. She couldn’t eat or sleep and she was suffering. I told her husband to call her PS immediately and insist on different pain meds and not take NO for an answer. i explained that, right now it was his job to advocate for his wife since she couldn’t do it herself.

A couple days later I got an email from him saying that her PS had changed her meds and she was doing MUCH better. It’s emails like those that made BoobCast well worth the emotional pain of writing those early posts.

I also want to thank everyone who talked to me about BoobCast at DragonCon last year. Being told in person that I’m making a difference means the world to me. Thank you for taking the time to talk to me.

Finally, my thanks to Carol Montoya, Lolly Daskal and the Woman At Denny’s. I promise that once I’ve had nipple reconstruction and recuperate from that, I WILL write the book. The foundation is in the works already.

My thanks to you all for reading, commenting and talking to me. Here’s to another 200!

 
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Posted by on January 18, 2010 in anchor breast lift, Anxiety, barter, boob job, Bra Fitting, bra sizes, Bras, breast, breast cancer, breast health, breast implants, breast lift, breast reconstruction, breast size, breast volume, Cash fees, checkup, chemotherapy chemical, clogged surgical drains, communication, complications, compression bra, compression dressing, cortisone, cosmetic surgery, cryotherapy, debreiding, debridement, deformity, dehiscence, Depression, Drain, Drugs, emotional healing, emotional scars, Excise, excise fluid, fear, Flashbacks, flourouracil, Fluid, granular tissue, granulation tissue, Healing, Hospital, Hospital fees, Hosptial Costs, implants, Incisions, Infection, Insurance, interferon, Invisibility, keloid, keloid scars, laser, Latissimus flap, latissimus flap reconstruction, malpractice, mammogram, mastopexy, Medical, Medical Insurance, memory, Nausea, necrosis, negligence, Nipple prosthetics, Nipple reconstruction, Nipples, Pain, Pain Management, plastic surgeon, plastic surgery, Plastic Surgery Disaster, podcast, Post surgical depression, Post Traumatic Stress Disorder, Prescription Drug Addiction, Prosthetics, PTSD, radiation, Reconstruction, Recovery, Scars, Seroma, serous fluid, Sex, silicone sheets, situational depression, Sleep, slow healing, suicide, Surgery, Surgical complications, Surgical drains, Surgical Fees, Ta Ta Tuesday, Uncategorized, V.A.C. machine, Vacuum assisted wound closure, wet to dry bandages, wheelchair

 

Back Strength

One of the aftereffects of a latissimus flap breast reconstruction Dr. Elliott told me about was back weakness. Since my back has one or two less layers of muscle, it only stands to reason that it’s not going to be as strong as it was.

For those of you who are not familiar with the reconstruction procedure, visit this site for a really good overview: http://www.optionsforbreastreconstruction.com/lat-dorsi.html

My concern currently is that I only go for about 30 minutes of constant activity while standing up without pain. I was out with Hubby on Friday hitting up garage sales and running other errands for about five hours. After three yard sales and by the time we finished up at Verizon, I was done for the rest of the day. I was hitting about a 5-6 on the pain scale and my back was so weak. I spent the afternoon and evening sitting in my recliner.

Interestingly the corseted feeling caused by the scar tissue under my skin is no longer nearly as severe as it used to be. It’s almost completely gone now though there are still days when my back is tight.

I wish I knew more about the back weakness issue. Web sites I have consulted talk about minor to moderate issues with it. I wouldn’t call this severe, but I WOULD call it frustrating as all hell. Granted I am not what one would call physically fit. I wasn’t to begin with. My record for being at one of the Disney parks is 14 hours. Ten hours was our average. That’s my form of exercise. Now eight hours is the most I can handle.

The worst thing is bending over. I can do it about 3-4 times. At 5, it starts to hurt and at 6-7 my back starts to seize up. Add walking to bending over and I’m pretty well trashed. I would have thought that sitting would have helped. While it does keep me from being in major pain, I feel really weak and it’s hard to get up.

Really, after the activities yesterday, I felt the way I did about three months out of surgery. It’s been nine months today and I expected to be completely healed by now. It is SO DAMNED FRUSTRATING!!!

What frustrates me even more is that I don’t know if this muscle pain is the same as when I used to work out too hard or if my body is still healing and I should take it easier on myself. I don’t know what the right balance is. I think I’ll be calling Dr. Elliot’s office on Monday and talk to his nursing staff about this.

I’ll update you all when I know something. In the mean time, today will consist of sitting on my ass and doing nothing

 

More of The First Two Weeks

This is another BoobCast Flashback episode originally dated Oct. 8, 2009. There are a few more drafts that I will continue to flesh out and post over the next week or so. Then I will really start more on the medical aspects of plastic and reconstructive surgery.

As the days passed, I saw that there were places where the bruising was getting lighter. There were other places that the skin just got darker and turned black. In the black areas, the skin felt a bit like rubber. It was slick but firm, a bit like what a dolphin’s skin feels like. It’s rather like thick, slick rubber if you’ve never petted a dolphin. Normally my skin has a slight grainy texture to it. These areas didn’t.

It was also about two weeks in that I noticed that my chest felt heavy. Yeah, I know. It seems obvious that my chest would feel heavier with two big water balloons shoved under my skin. My chest was insensate though. It wasn’t weight. It was pressure. For those of you who have read previous installments, you know what the cause of the pressure was.

For those who are new, there was a build up of 300ccs of serous fluid in each pocket. At one checkup one of the HiQ’s nurses even pointed out a place about two inches long on the outside of my left breast where it looked like there was a big bubble.

There was also another point where I took off the post surgical bra because I was having difficulty breathing and it felt better without the bra. So my husband called the after-hours line. When we explained to the HiQ what was going on, the doc actually had the nerve to suggest to Ken that I needed a Valium rather than try to figure out what was REALLY happening.

This person had all the bedside manner of flesh eating bacteria and most assuredly suffered from MDiety Syndrome.

HiQ stands for Hack in Question since I can’t legally reveal the doctor’s name.

 

The Movies In My Head

Originally Drafted on 9/24/08: This is another post in the Flashback series.

We all have these movies that play in our heads: Telling off the boss; That comeback we *should* have thought of 10 minutes ago; Kissing your favorite movie star. We all have a million “what if” moments we stockpile and replay on a regular basis.

My movies go something like this:

FADE IN on our bedroom. DH sitting on bed:

DH: I’m sorry. We just can’t afford to pay for your reconstruction surgery.” FADE OUT

Scene 2: Location: Bridge at Night. Camera follows human silhouette plummeting from bridge. FADE TO BLACK

Yeah. Really stable.

From a logical standpoint I know that we’ll be able to get the financing for the surgery. As a last resort we can take the money from our investment account. So it IS going to happen.  But thanks to the latest release from What-If Studios, I’m still imagining being stuck like this for the rest of my life.

I’ve been dealing with this for 14 months now and I’m looking at another five months before the first surgery.  Then probably another three months before I have nipples again.  After all that, there’s at least a year of healing. Fortunately there are good drugs and I’m getting in shape. I’ve already lost 12 pounds.

I’m just emotionally wrung out and more than ready for this to be over with.

Why May? Scheduling conflicts abound. December is obvious. January is my birthday. February is my youngest son’s birthday. March WOULD be okay, BUT April 4 is our wedding anniversary and April 25 is DH’s birthday. Then, we have BaltiCon in May. That gives me 11 weeks to recover before the rigors of DragonCon. So THAT’S why I’m waiting until May.

In the mean time I’m trying not to buy tickets to more of the What-If Studios productions.

 
 
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